One boy, one world, one fight, one life.

Genetics, Mystery Illness, Neurological, Pediatric medicine, Rare Disease, Royal Children's Hospital, Uncategorized, Undiagnosed, Undiagnosed children

So, we know there’s more than one,

We know the cure is; none,

We know the answers will come

But maybe too late for some.

We know it’s a road for many,

We know it’s a devastating journey,

We know it’s not that far away,

We know it’s your neighbour, your friend, your Aunt May.

But we don’t know what is wrong,

We fight to stay strong,

We don’t know what to do,

The clock is ticking too.

We don’t know who can fix this,

We don’t know what might be,

We lost something the day we learnt this fate was meant to be.

Our dreams torn away, in a matter of one day.

But our love only grew stronger and more meaningful and sound

We play, we love, we live, we party and rarely let it get us down.

We have taken this in our stride and we reach for the stars, for no matter what? Where? Who? And when?

As long as we’re together, we are happy again.

Our lives have meaning and our moments are rich,

with two cheeky boys and their funny antics

We will never back down, we will keep the flame alight

Creating awareness, and, never giving up the fight.

There is no turning back; it’s our mission, our goal

To save our child, from this deep black hole.

By Yael Cohn