Please tell your friends – share this site! Do you know a Doctor, pediatrician, Scientist, Chemist, Neurologist? If not, people you know will. We need experts to diagnose our boy.
Please share this link and reach out to your networks. From your hairdresser to your mailman to your Facebook friends. Please forward this on to see if someone may help our baby boy. So far we haven’t found a specialist who can diagnose Maximus, but we believe someone out there will have the answer – help us find that person.
I also urge you to keep checking into Maxi’s blog – as I shall aim to post regularly on medical findings etc.
Please email any suggestions to firstname.lastname@example.org. All ideas are welcome.
Maximus is one of many children around the world who are undiagnosed and, as a result, they are prone to falling through loopholes in the system. Without a diagnosis, there is little support available. I have learned;
- Some diseases are so rare there are no tests yet invented to find them.
- If, by miracle, a diagnosis is made, should an orphan drug be required, it can be very difficult to convince a pharmaceutical company to invest in a product that is not produced for the masses.
So whatever you can do within your community to support the cause of children with rare and undiagnosed conditions can also be a pathway to answers and cures.
Send Maxi cards and well wishes
The Pines Post Office
PO BOX 3123
Doncaster East, Victoria 3108