It has been one year since we launched this website and so many great things have happened since we decided to go public in our plea to find a diagnosis and cure for our son. Hopefully our story and challenges have helped other families in similar situations.
Sadly; we do not yet have a diagnosis, but thankfully Maximus was accepted for evaluation at the National Institute of Health’s Undiagnosed Disease Program in USA. A dream come true for us. We’re heading there next month.
This trip would not be possible without the amazing help and support of friends and family, social media networks and organisations like the Shane Warne Foundation, The Melbourne Jewish Charitable Fund, Syndromes Without A Name Australia, The Wilhelm Foundation and many more.
A wonderful local business where I have been a long term client, have generously offered to raise money for Maxi’s trip, by donating the sales of their organic products for the whole month of April. Thank you Masci Hair and Spa and thank you everyone for sharing our story and supporting our efforts to help our Maxi. This is a journey we are not on alone.