One year since launching this website!

Genetics, Mystery Illness, Neurological, Pediatric medicine, Rare Disease, Uncategorized, Undiagnosed, Undiagnosed children


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It has been one year since we launched this website and so many great things have happened since we decided to go public in our plea to find a diagnosis and cure for our son. Hopefully our story and challenges have helped other families in similar situations.

Sadly; we do not yet have a diagnosis, but thankfully Maximus was accepted for evaluation at the National Institute of Health’s Undiagnosed Disease Program in USA.  A dream come true for us.  We’re heading there next month.

This trip would not be possible without the amazing help and support of friends and family, social media networks and organisations like the Shane Warne Foundation, The Melbourne Jewish Charitable Fund, Syndromes Without A Name Australia, The Wilhelm Foundation and many more.

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A wonderful local business where I have been a long term client, have generously offered to raise money for Maxi’s trip, by donating the sales of their organic products for the whole month of April.  Thank you Masci Hair and Spa and thank you everyone for sharing our story and supporting our efforts to help our Maxi.  This is a journey we are not on alone.

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7 thoughts on “One year since launching this website!

  1. I wish you the very best of luck in the USA. I hope it provides you with some answers for Maxi. xox

  2. Dear Yael,Edan,Maxi and Jacob love and support goes with you from many people to the USA in the quest for an answer for Maxi you are an inspiration to us all and we all hope for a positive outcome all the best Annie

  3. Wow. What a journey. We wish you all our love and luck for this next bit. I hope you get to come back with answers and resolutions! Love to you all. xxxx the Ferguson-Ruttens.

  4. Hi Yael & Maxi, I just saw your story on the news tonight! 😊 good luck with your trip to The States, we hope you find some answers and get some clarity on Maxi’s diagnosis.

    Trish & Michael xx

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