Update on Maxi on The Shane Warne Foundation blog


A big thanks to ITalkTravel and The Shane Warne Foundation for their ongoing support.

Blog of Maxi’s Trip


The Shane Warne Foundation were so supportive with my blog, we shall continue to do updates from time to time.

Herald Sun Article

Thanks to the Shane Warne Foundation and ITalkTravel for making this trip possible.  And to all our wonderful friends, family and many other organisations who have continued to support Maxi through this journey.

Below link to Herald Sun Article on Maxi’s remarkable trip to the Undiagnosed Disease Program at the National institute of Health in Bethesda U.S.A.


Video of Maxi’s Trip to NIH Undiagnosed Disease Program


Thanks to The Shane Warne Foundation and I Talk Travel for making this trip possible.  And special thanks to all who have supported Maxi past and present.



Maxi is undergoing tests at the Undiagnosed Disease Program in U.S.A

Follow our daily blog at the Shane Warne Foundation website.

Huge thanks to Shane Warne Foundation for all they have done to help us.

Hello America!

It’s been a big week for Maximus, first appearing in this weeks New Idea Magazine, then was on Channel Seven news, and in the Herald Sun Newspaper paper,   A huge thanks to everyone involved and a special thanks to the Shane Warne Foundation and Tom Manwaring who are sponsoring our trip to the Undiagnosed Disease Program.  And huge thanks to all our wonderful supporters.











Seven News Story on Yahoo.com















I shall be doing a blog for the duration of the trip and here is the link below..


One year since launching this website!











It has been one year since we launched this website and so many great things have happened since we decided to go public in our plea to find a diagnosis and cure for our son. Hopefully our story and challenges have helped other families in similar situations.

Sadly; we do not yet have a diagnosis, but thankfully Maximus was accepted for evaluation at the National Institute of Health’s Undiagnosed Disease Program in USA.  A dream come true for us.  We’re heading there next month.

This trip would not be possible without the amazing help and support of friends and family, social media networks and organisations like the Shane Warne Foundation, The Melbourne Jewish Charitable Fund, Syndromes Without A Name Australia, The Wilhelm Foundation and many more.














A wonderful local business where I have been a long term client, have generously offered to raise money for Maxi’s trip, by donating the sales of their organic products for the whole month of April.  Thank you Masci Hair and Spa and thank you everyone for sharing our story and supporting our efforts to help our Maxi.  This is a journey we are not on alone.



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